But
as a chronically ill patient we have a long list of encounters with nursing staff,
so we must also fondly recall the nurses who made unquestionable improvements
in our care by being our advocate when no one else would listen, or just by holding
our hand while we received a underwent painful (and possibly lonely) procedure. When
I was recently checked into the hospital, the nurse had to push me outside from
the wound care center around the hospital's construction zone walkway. Ironically,
we both had rheumatoid arthritis and I made a new friend by our simple ten-minute
conversation. Despite my infection, I felt much more comfortable by the time I
got to the hospital. As
the editor of HopeKeepers Magazine, I have tried to get a nurse to write an article
explaining what a typical day is like at a doctor's office where she is employed.
I know many minutes are filled with frantic scheduling issues, checking patients
in, trying to please the physicians, all while doing more that can be expected
in the time allotted. I
haven't found a nurse yet who was even willing to be interviewed for an article;
more than a few have said, "If my article was discovered I could lose my
job!" With chronically
ill patients and nurses continuing to improve their understanding of one another's
and each other's needs however, there is only room for improvement in this long-standing
relationship. Sadly, sometimes the nurse/patient relationship lasts longer than
some marriages. Here
are 12 ways to better understand the chronically ill patient. [1]
When you ask "Are you taking any medications?" and I hand you two pages
with them listed, please don't look shocked or as if I am an addict. [2]
It grows tiring to always be the patient and only have people interested in my
physical body. When you ask me about how I am coping with my illness emotionally,
I feel like you really care. Sometimes it loosens me up enough that I may even
be more comfortable and forthcoming about things that doctor may benefit in knowing
about the physical symptoms. [3]
Thanks for celebrating little things with me, such as reaching a goal weight or
decreasing a medication. I know you see these things every day, but to me they
are a big deal. You are one of the few people who understand how hard it is for
a chronically ill patient to reach these goals. Your enthusiasm makes me day! [4]
Logically, I know you don't know every medication on the market, but when you
have to ask me how to spell the medication that is advertised in every women's
magazine, I wonder how often you get out of the office. [5]
When you say things like, "You cope so well with your disease. I really admire
what a great attitude you have," that can keep me going for another week. [6]
When you have asked, "Can I pray for you?" I'm very thankful for your
offer. I know some of your patients may say no, but for many, it may be the first
time someone has ever offered to pray for them. [7]
There are times when I am have been having a medical procedure and my family is
not able to be there. I know it's a minor procedure for you, but the fact that
you understand it's a major procedure to me, and you stick around and hold my
hand, is one of the nicest things anyone ever does for me. [8]
I am somewhat of a "professional patient." And that means I can come
across a little bit like a control freak when it comes to monitoring my pain level
and knowing when and how much medication I need to control it. That said, handing
you the reins of dispersing all of my medication when I'm in the hospital is a
challenge. The time of morning I take my drugs makes all the difference in my
day. So I appreciate when you are able to get it to me as close to the right time
as possible. [9] I know
you have bad days too. Feel free to tell me "Today has been a little crazy."
You are allowed to be grumpy, but let me know if I am not specifically the cause
of your mood and to the so I don't take it personally. [10]
I really do have a life, even if it's filled with medical visits, therapies, lab
test, etc. I'm not trying to be difficult when you are scheduling appointments
or trying to reach me. I just want my family to have as normal of life as possible
despite my illness. [11]
I appreciate it when you are able to call in prescriptions so they are ready at
the pharmacy when I get there. I know it's an extra step for you, but it helps
me tremendously. [12] When
I am in the hospital your willingness to help with a shower, change the sheets,
or just have a conversation to distract me from where I am, makes all the difference
in my stay. I appreciate the fact that you treat me like a real person, and not
just a project. Being chronically
ill is not easy. Neither is the career of a nurse. By each person remembering
to say, "thank you" and "I admire your strength," both the
nurse and the patient can have an effective, even enjoyable, relationship. By
Lisa Copen, who is the founder of Invisible Chronic Illness Awareness Week Reprinted
from IllnessMinistry.Ning.com

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